Advocacy for the Pediatric, Adolescent, and Young Adult Brain Tumor Survivor


This paper demonstrates the need for advocacy and self-advocacy on behalf of the pediatric, adolescent, and young adult brain tumor survivors. A decreased quality of life is an issue for these patients arising from residual effects of surgeries, treatments, and the disease itself (Bhat et al., 2005). Hobbie et al., (2016), suggested that advocacy for these patients in terms of educational, vocational, and social support is a vital part of their survivorship treatment. Bruce, Newcombe, & Chapman (2012) submitted a study based on a school liaison program for children with brain tumors. Georgiadi & Kourkoutas introduced a single case study on school reintegration in 2010 for children with cancer. Bhat et al. (2005), initiated a health-related quality of life (HRQOL) study concerning physical, emotional, and social functioning. As the survival rate surges from years past with the advancement of medical treatments, then the need to spotlight HRQOL in pediatric brain patients should be a part of the medical assessment given by oncologists and other pediatric providers (Bhat et al., 2005).

Year Manuscript Completed

Spring 2020

Senior Project Advisor

Dr. R. Michael Bokeno

Degree Awarded

Bachelor of Integrated Studies Degree

Field of Study


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