Murray State Theses and Dissertations
Abstract
This qualitative study investigated the experiences and perceptions of caregivers for individuals with Parkinson's disease (PD) in rural versus urban settings, with particular emphasis on their access to and utilization of community resources. Through semi-structured interviews with 30 caregivers, the research explored how geographical location impacts caregiving challenges, support systems, and resource accessibility. Using Andersen's Behavioral Model of Health Services Use as a theoretical framework, the study revealed both universal caregiving challenges and location-specific barriers. While all caregivers reported significant emotional burden and healthcare system navigation difficulties, rural caregivers faced distinct challenges related to resource accessibility and specialized care availability. Urban caregivers, despite better access to formal resources, encountered unique obstacles in coordinating complex healthcare systems and utilizing available services. The analysis identified four major themes: psychosocial impact, importance of connection and support, the need for education, and challenges with healthcare systems. The findings suggest that while some aspects of caregiver burden are universal, the manifestation and management of these challenges vary significantly based on location. The study contributes to the understanding of geographical disparities in PD caregiving and provides recommendations for developing targeted interventions that address both universal and location-specific challenges. These insights inform healthcare providers, policymakers, and support organizations working to enhance caregiver support across diverse geographical settings.
Keywords: Parkinson's disease, caregivers, rural health, urban health, community resources, healthcare access, qualitative research, geographical disparities, support systems, chronic disease management
Year manuscript completed
2025
Year degree awarded
2025
Author's Keywords
Parkinson's disease, caregivers, rural health, urban health
Degree Awarded
Doctor of Education
Department
Educational Studies, Leadership and Counseling
College/School
College of Education & Human Services
Dissertation Committee Chair
Alison Ward Brown
Committee Member
Jennifer Nikki Gaylord
Committee Member
Amanda Duncan
Committee Member
Brian Bourke
Document Type
Dissertation
Recommended Citation
Jones, Rebecca, "THE GEOGRAPHY OF CARE: RURAL VERSUS URBAN CAREGIVER PERSPECTIVES ON COMMUNITY RESOURCES FOR PARKINSON’S DISEASE MANAGEMENT" (2025). Murray State Theses and Dissertations. 369.
https://digitalcommons.murraystate.edu/etd/369
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