Community Powered Innovation For Connected Cancer Care: Using Innovation Studios to Develop A Symptom Monitoring Tool for Cancer Patients in Appalachia
Grade Level at Time of Presentation
Junior
Major
Human Health Sciences
Minor
Psychology
Institution
University of Kentucky
KY House District #
82
KY Senate District #
21
Faculty Advisor/ Mentor
Ming-Yuan Chih
Department
Department of Clinical Sciences
Abstract
Introduction
The project of LAUNCH (Linking and Amplifying User-Centered Networks through Connected Health) aims to connect rural cancer patients to providers using broadband Internet. This public-private partnership demonstration project is between the Federal Communication Commission’s (FCC) Connect2Health Task Force, the National Cancer Institute (NCI), the UK Markey Cancer Center, the UC San Diego Design Lab, and Amgen. To develop user/community-driven technology in remote cancer symptom communication, we have conducted Innovation Studios. This poster aims to share the recruitment methods for these studios and to highlight the key findings. This poster is presented on behalf of all aforementioned partners.
Methods
We held two studios at the UK Albert Chandler Medical Center on October 7th and 8th. Participants were recruited via email initiatives, flyering, and in-person recruitment at a local cancer patient lodging facility. These design studios resembled a focus group-style setup where groups would create prototypes together.
Results
Participants include 10 cancer patients/survivors, 3 caregivers, 4 oncologists, 1 nurse, 9 community partners (Amgen, Humana, Bitsource), and 9 LAUNCH team members. The first studio focused on “Improving symptom management.” The goal of this workshop was to develop improvements for the current patient symptom survey provided at the UK Markey Cancer Center. The second studio focused on “A supportive ecosystem for symptom management.” We used the new survey to brainstorm an app that patients could use to report symptoms and to self-manage symptoms at home. A prototype was developed.
Conclusion
The Innovation Studios provided participants with the opportunity to share their ideas and experiences in order to develop an app prototype to help rural cancer patients. A new survey was created which led to the development of a usable app prototype. This tool can now be used to develop a final product that will enhance symptom monitoring in rural areas.
Community Powered Innovation For Connected Cancer Care: Using Innovation Studios to Develop A Symptom Monitoring Tool for Cancer Patients in Appalachia
Introduction
The project of LAUNCH (Linking and Amplifying User-Centered Networks through Connected Health) aims to connect rural cancer patients to providers using broadband Internet. This public-private partnership demonstration project is between the Federal Communication Commission’s (FCC) Connect2Health Task Force, the National Cancer Institute (NCI), the UK Markey Cancer Center, the UC San Diego Design Lab, and Amgen. To develop user/community-driven technology in remote cancer symptom communication, we have conducted Innovation Studios. This poster aims to share the recruitment methods for these studios and to highlight the key findings. This poster is presented on behalf of all aforementioned partners.
Methods
We held two studios at the UK Albert Chandler Medical Center on October 7th and 8th. Participants were recruited via email initiatives, flyering, and in-person recruitment at a local cancer patient lodging facility. These design studios resembled a focus group-style setup where groups would create prototypes together.
Results
Participants include 10 cancer patients/survivors, 3 caregivers, 4 oncologists, 1 nurse, 9 community partners (Amgen, Humana, Bitsource), and 9 LAUNCH team members. The first studio focused on “Improving symptom management.” The goal of this workshop was to develop improvements for the current patient symptom survey provided at the UK Markey Cancer Center. The second studio focused on “A supportive ecosystem for symptom management.” We used the new survey to brainstorm an app that patients could use to report symptoms and to self-manage symptoms at home. A prototype was developed.
Conclusion
The Innovation Studios provided participants with the opportunity to share their ideas and experiences in order to develop an app prototype to help rural cancer patients. A new survey was created which led to the development of a usable app prototype. This tool can now be used to develop a final product that will enhance symptom monitoring in rural areas.